Wednesday, August 5, 2009

Day 58

The care team at TGH had said that Molly would come home tomorrow. Because of the continued medical problems, Molly's discharge date is now August 20th.

Yesterday Molly passed out during physical therapy. There has been a continued drop in her hemoglobin count. Last week she took 4 units of blood and everything seemed fine but now it is declining again.
Drs are concerned about the blood clot enlarging in her left leg.

After many tests and searching the blood loss seems to be coming from the GI tract in the pelvis area and sinking to the leg. At least that is the way I understand it. Surgery will take place soon to correct this.

Despite the setbacks where Molly cannot do her work in physical therapy nor occupational therapy, she has continued to make some strides.
Her right arm continues to build strength and range of motion while her left arm is unencumbered from the support brace she had been wearing. The left elbow will require surgery down the road in months to come as there is little range in movement due to the unexpected bone growth that occurred there following the breakage.
Molly was able to be placed in a harness that enabled her to be held in an upright position similar to walking. She cried tears of joy.

Biggest news is that Molly has been able to slightly, and I mean slightly... able to move her left thumb!!!


58 days ago
she was not able to move anything except her eyes and mouth. She has made remarkable progress.

Work on Samy Dr continues. We have now cleaned out the garage as well as the living room/dining room area of our home.
There is no furniture to speak of the the LR/DR to make way for living quarters for Molly. Living room sofa, chairs, coffee table... gone! Bakers rack, gone! The dining room table and chairs... gone! Even the old big screen TV (console style) in the living room will be gone on the next load out of town (to the dump)!

A mechanical bed and lift are being installed to take their place. This will be her living area for the next couple of months when she is able to come home.

"The project" was emptying the garage! Tons of stuff!!! This is getting ready for the builder to start turning the garage into Molly's long term digs. A special needs roll-in bath will be installed that will allow Molly proper care with greater ease.

Doors will be widened through the house as needed.

We are still praying that some money will become available so Molly will have the opportunity to have extended physical therapy and learn more life skills that she will need on her road to recovery.

We also pray that sometime in the near future Molly will have the opportunity to attend The Miami Project To Cure Paralysis. This facility at the University of Miami was founded by Nick Buoniconti and Dr Barth Green after Nick's son suffered a spinal cord injury (not too different from Molly) while playing college football.
Today the Miami Project is the world's largest and most comprehensive spinal cord research center. They are taking innovative approaches to curing paralysis.

Thank everyone for your generousity!

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